Monday, March 31, 2014

Do or Do not there is no trying, only cattle prodding

As pulsating pains throb in my head, I wonder why the sudden onset of more symptoms; electric pains, chest pains, dizziness, high heart rate, and this odd sensation of, waves of pain filled numb tingles that pulsate from head to toe. It's like my heart isn't getting enough blood to my hands as fast as it needs to. The last is the oddest and most worry some symptom to deal with tonight, as it is just so incredibly painful and confusing. It started with cold numb tingling in my hands, and grew to a hard to describe feeling over this past week. Its like this painful tingling sensation that seems to pulsate, but not like a regular heart beat it goes, fast a few times and then regular and then fast again; but at the same time it   feels like when a phone gets fuzzy and I feel like sometime I feel my own body cutting out on me.

I'm light-headed and dizzy when standing or walking, which isn't unusual for me but seems a lot worse recently. The other thing troubling me is these really sharp stabbing pains that come with out warning, stabbing my lower right side and chest.... I suppose I should go in to the dr. but I'm having a hard enough time concentrating on anything, or focusing on things. So as I type my thoughts out forgive me if I get scatter brained...I feel a tad like a cow that needs prodding to move or do anything. My husband and I were watching this show on discovery channel about how they transport cows on big boats to get them to other markets in other countries. During the show you see the cows getting loaded on to the boats and as the cow rounds the corner off the truck and looks at the ramp on to the boat, theres this stubborn ox look that says,"Oh, hells no!" or "you expect me to go up that!HA!" and then the cow starts reversing his arse backwards into the truck bed. Thats how I feel when I'm flooded with pain as I open my eyes in the morning...or parts of the day as I endure the constant pain. On the show the australian cowboys start hollering and prodding at the cattle all the way up the boat. As I watched it was a very interesting show but I couldn't help feeling as though I could relate to those cows all week. I'm on as much tylenol and pain killers as I can be on but, it's not even close to enough. So, in both hope and desperation I continue to my search, scanning the internet for what the doctors are missing.

As well I continue to try to push past my fatigue and pain and have attempted, a bike ride this past weekend. I was excited to be on my bike in general as I haven't other than in the living room when I attempt to exercise. (explanation, we have a stand it fits into and is held up like a stationary bike, the wheels just spin. So you see I do not bike around this tiny place like a weirdo! he he) Any who, we threw our bikes in the car and took them down to Fort Langley where theres a very pretty trail along a river. I started out with my husband enjoying it but, about halfway I was in so much excruciating pain we had to take breaks as we turned around and headed back. Although my pain reared it's ugly ugly head, I count this as a win for me as I tried my best, and that's whats important at this point. When we left the house this morning we talked with our neighbours before getting in the car and heading out, and  I was asked how I was doing and if the doctors figured it out yet. This is a weary question as it's been 4 years of us no answers and although I am trying to accept that I'm going to deal with this for a while, any way I look at it I cannot accept my doctors conclusion: simply that we may never know. I thought it was hard choking down this pill that I'm living in awful pain that causes constant visits with specialists and the dr.'s I know by name in the ER. But accepting not ever knowing what is going on in my body is just beyond cruel, I mean its that dark thought in the back of my head, I don't say it out loud for fear it'd make it more real...my acceptance at this moment can only be stretched so far. Like a rubber band if stretched to far I may spring back to being frustrated with even having to accept that I can't do what I want to, as in get out of bed or go hangout with friends without being half distracted by pain. I'm not telling him, he's mean when he says that and that Im mad that it sounds like he's giving up on me. Because thats mean, there's somethings you just don't say to someone dealing with high high amounts of pain on a daily basis, it makes it seem as though your sorry to tell me this but your really not, cause your bored with having me in and out of your office so often. Doctors need more tact I think, but so does the world. At least I can still say I get up each day, even when everything hurts and I try my best to do the most that I can. Some days the most I can is very little but others it's a bit more, like I mopped our house yesterday and I even cleaned the walls too! Okay true I pushed to far and ended up hurting, but I kept trying and went on the bike ride when I thought I felt better, which made me sicker. But the point is I tried and that is a feat in it's self when dealing with pain. With chronic pain of any sort, you can say what you know you can do; but it changes from day to day that the next you might not be able to and then have overcommitted yourself. And on the other end, you can say you can't handle doing things like going hiking, or biking, but unless you keep trying every now and then you might surprise yourself. It's important to keep trying, as often we can get stuck in a rut when we stop trying. Some accept that there in pain and can't do anything they want to too easily, they stay in bed or stop trying all together and that's very sad and understandable. As it's not easy mentally to deal with pain chronically, I get that, but don't lose hope or sight of trying because then you lose so much more than just your ability to do things. I know it's hard and I know very very well that it hurts but, I'm not taking this lying down and neither should anyone else.

Simply put giving up is the easy way out, trying is hard. When I can't plan my future, because I can't tell you what pain level tomorrow may bring, and all I know is this constant pain, this constant struggle, it's not just hard. Hard is an understatement. But that's always where faith steps in for me, I can't see the future, to say if I can handle having kids someday, I can't even see a few months ahead. I don't know if I'll be able to keep going through school to follow my dream of being a crisis counsellor, I can't say how I'm going to get through classes, I can't book a vacation in advance cause I can't say I'll be okay for it. Day by day it's hard, but each day my goal is simple and consistent, to try.

On another note, Sigmund Freud (1856-1939) was an Austrian neurologist who founded the practice of psychoanalysis, a system espousing the theory that unconscious motives dictate much of human behavior. He was a large support of atheism, similar to Jesse Ventura, former governor of Minnesota, who once said, “Organized religion is a sham and a crutch for weak-minded people who need strength in numbers.” Agreeing with him is pornographer Larry Flynt, who commented, “There's nothing good I can say about it [religion]. People use it as a crutch.” Ted Turner once simply said, "Christianity is a religion for losers!" Ventura, Flynt, Turner, and others who think like them view Christians as being emotionally feeble and in need of imaginary support to get through life. Their insinuation is that they themselves are strong and in no need of a supposed God to help them with their lives. The odd thing however is although there are famous people who view religion in general, not only christianity as a crutch, it is interesting and at least very notable that I have never heard of any famous people of whom suffered in life, and also held these same views. It's interesting how vocally against religion, faith, and God, people can be when they are doing well or having a normal good life.

My question is what do they do when they find out they have cancer, or untreatable disorders? Do they rally for the right of euthanasia? Or how else do they deal with a life of suffering and chronic pain? It's well known that when a guy comes into rob a bank, when buildings collapse, or more recently a guy goes into a movie theatre and shoots people, in these moment people cry out to God. Maybe they're not religiously specific and I don't think thats what matters, the point is they cry out to whatever they believe is out there. Contrary to Freud, I believe that this may be because some people have an illusion that if life is good and they have no need for a God, they do not find religion appealing. However when illness, trauma, or crisis enters their lives they cry out, to 'a' God. This idea of an illusion is more that they live happy lives without him and therefore don't need him, until crisis enters at which they proceed to get mad at 'a' God or cry for help to him. The illusion being that they are kidding themselves, this makes me wonder if deep within every human we take in the awe of the world and cannot deny that there is a divine design. I'm inclined to believe this because, when I study the anatomy of the brain I cannot help but be in awe of how intricate it is. I can understand people getting angry and turning away from God, or denying his existence based on his lack of being more like a genie, or which ever they believe justifies their choice, that's for them to deal with and work through. But, I have a very hard time understanding how people can be atheist, when divine design is all around them. What is their reasoning for the way their pain sensors send message to their brains telling them to pull their hand away from a hot kettle as they touch it. Even scientists cannot duplicate these pain sensors in a glove form to help lepers as it is too intricate and complex a design. (Philip Yancey goes into depth about this in his book: Where is God when it Hurts?) However, I'd be especially interested in learning how atheist deal with this issue of suffering...here, comedian Dane Cook raises a valid point to me in his joke,
"He sneezed. debris's floating every where. Now at this point, I'm disgusted. And I'm grossed out by it. And at first, I'm thinking 'I'm going to go off on this guy'. And then I decided, 'Wait a second, Dane. Don't do that. Take the high road. Try to be polite'. So I turn to him and this is what I said. I looked at him and I went: 'Uh, God bless you' I say 'God bless you' by the way when someone sneezes. I don't say 'Bless you'. I don't say that because... I am not the lord. I can't do that. I'm just a messenger for big guns upstairs, you know what I'm saying? And I never go with 'Gesundheit'. I don't even know who says that. If I say 'Gesundheit', I feel like I'm honoring Hitler. Like I should be like 'Gesundheit!'. I end up on the History Channel 'cause a guy sneezed. 'God bless you'. This is what the guy comes back with. Here's where it starts to get out of control. The guy looks at me and very condescendingly goes: 'Uh, yeah. I'm an atheist'. What a jerk, right? I'm trying to be polite. I don't know you're an atheist. And even if I did, what am I supposed to say when an atheist sneezes? 'Uh, yeah, when you die, nothing happens'."

Another interesting question that is worth mention is how other religions explain the reasons for undeserved human suffering. (undeserved because most feel some people deserve what they get) So perhaps next post I'll think more on that but for now there's an interesting article on it. http://www.beliefnet.com/Faiths/2005/01/Why-Bad-Things-Happen.aspx

~ElysiaB





A day without a perdurable is like a day without sunshine



路,是人走出来的。。。

那你要走去哪里?

走到我想到的地方啊。

哇,那要走好远哦!


。。。

I Won't Be Left Behind

I Won't Be Left Behind

I run my fastest
But still get beat.
I land on my head
When I should be on my feet.
I try to move forward,
But I am stuck in rewind.
Why do I keep at it?
I won't be left behind.
                                                                                                                                                                                                                               
The harder I am thrown,
The higher I bounce.
I give it my all,
And that's all that counts.
In first place,
Myself, I seldom find.
So I push to the limit-
I won't be left behind.

Some people tell me you can't,
Some say don't.
Some simply give up.
I reply, I won't.
The power is here,
locked away in my mind.
My perseverance is my excellence,
I won't be left behind.

Make the best of each moment,
The future is soon the past.
The more I tell myself this,
The less I come in last.
Throughout my competitions,
I've learned what winning is about.
A plain and clear lesson-
Giving up is the easy way out.

So every night before I go to bed,
I hope in a small way I have shined.
Tomorrow is a brand-new day,
And I won't be left behind.

By Sara Nachtman

Today I went for ultrasound testing and x-rays, that a internal specialist sent me for. After I had put the scratchy blue gown on and waited in the third of five waiting rooms (I suppose on for each stage of differing processes) I over heard a lady at the desk talking with the other lady next to her. They were talking about starting to write down everything they never said but should have... An interesting idea I thought. There are so many things that are left unsaid, some for good reason and others because we hold back cause we don't have the right words. Yet, given time and thought perhaps those things left unsaid could have repaired fences or bridges burned. What relationships could have been saved, bruised ego, or feelings could have been averted, I don't know it just made me wonder what are people around me leaving unsaid. And if I wrote out all the things I've left unsaid how much would there be? Perhaps it could be a form of therapy I might try writing out everything left unsaid from past circumstances. 

All I know is that this disorder is like a force field put around me containing my actions to slow motion while everyone else flies by. I run my hardest but still get beat, yet the truth is that giving up would be the easy way out. I could easily give up and some days I do. Stay in bed, and let the pain consume me, laying there in self pity as the world flies by. Yet, I keep getting up and pushing as hard as I can each day, because I desperately don't want to be left behind. Although stopping to consider who is passing me by, or leaving me behind I wonder, well the answer is I'm not certain. I just feel this dreaded feeling like I'm behind the rest of the world. It may be because I am no longer apart of that social group I grew up in, but I had no hand in them leaving me behind, that was not my choice. I was sick in bed and could not keep up appearances and soon am long forgotten but, I feel left behind nonetheless. hmm, something I'll move past eventually. I am me, just who I was created to be and so you see I'm exactly where I'm meant to be. 

Sunday, March 30, 2014

:) :) :)

feel like posting sth happy here...

i got reminded by a fren tat a blog is not a place where u juz dump all ur negative thoughts n be too emo... it doesn't show the true u... i must find a balance btw wat i blog, not too much of my negative ramblings...

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sorry din ask for permission to post this... ahaha... u guys r making someone smile here, so nvm lah... haha!

spread the love ppl!!!

Saturday, March 29, 2014

Things to avoid during this month

1.  Don't blow my nose out loud in public.
2.  Don't start speaking German to all angmohs i see.
3.  Don't stop at the right side of the escalator.

Ah feel like a stranger at KLIA. The only language that ppl can understand me is when i speak malay, the rest speak only cantonese which i refuse and cannot converse in. 6 hours to go and i smell like a horse. (ewww) Thanks to those who follow me throughout my journey. Your absence might be unknown but thanks for being there. and a wise man once said, (me lah)
I wish I can go somewhere and just get lost. Because the only people who ever get any interesting place are the people who get lost.

Genuine Joe Anti-Fatigue Mat with Beveled Edge, 3 by 5-Feet, Yellow Border, Black


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Anti-fatigue mat is made of chemical-resistant, nonflammable 9/16" thick material with beveled edges and yellow borders for additional safety. ideal for workshops and factories. grease-resistant and oil-resistant design helps prevent slips.


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Friday, March 28, 2014

My stand

in bersih,  of course i support the cause of it, to ask the Election Commission (EC) although not nicely, to conduct itself properly for the sake of democracy...

but of course (again), after witnessing a withdrawn post on a particular website *coughs from my sponsor *coughs i realise tat i don have a stand at all, i cannot and will not have the right to wear yellow shirt roaming around KL city on Saturday afternoon, to have a small logo of Bersih2.0 on my facebook profile pic and the fact tat i m risking myself writing sth on this not-to-be-named-issue on my publicly accessible blog is really gonna be a threat to my scholarship. hmmm... maybe i shud consider on withdrawing this post as well...

i wish i can be like the humble Malaysian poet, A Samad Said, who can write sth poetic about this issue (but later got arrested because of the poem so i shud be thankful tat i m not so poetic n still be able to keep my scholarship)

Last but not least, i wud like to share a poem by A Samad Said (not the one tat got him arrested but the one we all loved during Form 1 english literature class...)

He saw a dead crow
in a drain
near the Post Office,
He saw an old man
gasping for air
And a baby barely able to breathe
In a crowded morning clinic
This land is so rich
Why should we suffer like this?

I want clean air
For my grandchildren
I want the damned fools
To leave the forest alone,
I want the trees to grow,
The rivers run free
And the earth covered with grass.
Let the politicians plan how
we may live with dignity
Now and always

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Thursday, March 27, 2014

Reviews for Green Toys Dump Truck, Pink

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Brand : Green Toys

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Genuine Joe Anti-Fatigue Mat with Vinyl Foam, Beveled Edge, 3 by 5-Feet, Black


Features
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Wednesday, March 26, 2014

Latest Deal for Gratiae Organics Facial Cleansing Lotion, 6.8 Ounce

Gratiae Organics Facial Cleansing Lotion, 6.8 Ounce


Gratiae Organics Facial Cleansing Lotion, 6.8 Ounce


Brand : Gratiae Organics

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GRATiAE Organics facial cleansing lotion is a rich, creamy cleanser for all skin types, that gently and effectively cleanses the skin, removing dirt, surface impurities and makeup, without drying the skin. This amazing product features jojoba, sweet almond oil, and musk rose oil for superior lifting, revitalizing, firming and anti-aging; Leaving your skin feeling silky, cleansed, soft, supple and smooth. Simply massage over the face and neck, using fingertips and wipe away using a tissue or rinse off with clean water. GRATiAE Organic is committed not only to seeking and sustaining organic and natural materials, but also to using all our planet's resources wisely. We use “Responsibly Wild Crafted” herbs which are harvested with minimal environmental impact and are replanted with long-term sustainability in mind. In addition, we're focused on Holistically balanced products which keep the plant constituents in a state of "natural wholeness" without adulterating any "naturally-occurring bonds". (This kind of product is achieved utilizing a proprietary cold extraction process .) Holistically Balanced products enable us to maintain a focus on the whole plant and the synergistic action of all of the constituents in the plant as created by Nature. All GRATiAE products are cruelty- free, not tested on animals, and they come in packaging that's recyclable. GRATiAE Organics... Created by Nature, Perfected by Science.


Tuesday, March 25, 2014

Wellness Mats Original 32WMR Original Anti Fatigue Mat


Features
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Reminiscence


i remember when i was in primary sch, i went for art classes at one of the shoplots in sibu behind Hong Leong bank... and during tat time there's no handphone yet so after each class i wud go to the nearest bookstore while waiting for my parents to fetch me... n i just loved the stationery section n wud always look at the rulers, ballpens, pencil box (remember the metal ones which we all loved) n sth that never fails to catch my eyes is the very expensive mechanical pencil...

fast forward to present times, i juz received a parcel from home n it includes a THE ultimate mechanical pencil... it's a dream come true! thank you mum and dad!

Monday, March 24, 2014

如果我可以。。。

If i can...

If i could swim,
i wud swim over the atlantic ocean,
juz to see u face to face...

If i could fly,
i wud fly over the everest,
juz to catch a glimpse of u...

If i could stop the time,
i wud stop it when i see u next time,
juz to be forever wif u...

BUT I CAN'T...

muahahaha...

to me, everything is like a pile of shit,
but u r so special in my eyes,




because you are two piles of them...


(this is direct translated from chinese so it wud sound funny here, try to translate it back to chinese n see the essence of the joke)

to those who read this n it makes u smile, hav a nice day!

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Sunday, March 23, 2014

Life lesson in the car (Part 1)

I mention in my previous post tat i hav been driving a lot since coming back... most of the time it will be fetching my youngest bro around to different tuition centres located in different corners all around sibu, i wonder where he got all the contacts from... so since he is he only one among my other siblings who is stil in sibu, so i hav no choice but to bully him coz the others r not around to be bullied... haha

so on one particular day, i asked him in the car :
"so i heard they call u XXX (a very rude word in foochow) in class..."

he answered back almost immediately :
"aiya u r so not open minded like mum, in my class XXX means good fren..."

upon hearing this, i immediately raise my voice (young kids nowadays!) :
"so if someone murder someone, wat do u call him? a murderer right? so in this case, if someone call u XXX, then r u one big fat XXX too?"

NO

THEN Y DO U LET OTHERS CALL U XXX?

FREN MAH...

UR HEAD! THEN IF A MAN KILLED ANOTHER MAN, ALTHOUGH THE OTHER GUY WILLINGLY ASK THE MAN TO KILL HIM, HE IS STILL A MURDERER RIGHT? SO EVEN IF U WILLINGLY WANTED TO BE CALL XXX, U R STIL A XXX, NOT A FREN!!!!

(nods in agree...) speechless for a while, n finally admit tat i hav a point there...

*phew, i don even know wat i was saying actually... haha

*the conversation took part in mandarin, so above is juz a translation...

Small Steps Every Day






I went into the Naturalpath clinic today and looked like everybody else, just another person waiting for the Doctor.Yet, its painfully clear how unlike everybody else I am when I get home and literally crash on my couch after taking more painkillers that again don't help this kind of pain. Sometimes I wonder if its worth it fighting the pain with doctors, drugs, surgery, time, and energy. It doesn't feel like it's getting me anywhere, but tired faster. All I can think of right now is how painfully alone I am in this situation, I mean literally there's no one else home lol, but seriously since I got sick six years ago I have family and that's it. I mean there are good days and there are bad, I just feel like today isn't either. It's one of those days when I force my body out of bed and do what I have to only to come home worse for wear and realize I'm really lonely being sick all the time. I want a day off. I'm a little young to not have friends, but have two cats that I spend most of my time with. That's sad, I mean I need to get a life yet, I'm stuck in this body that gets worse, that bleeds when it shouldn't...that doesn't digest any food that goes into it, that wakes from pain, that feels at times only pain. I'd like to say it's been a rough day but truth is its been a rough couple of years. I'm trying hard not to let it get me down I truely am...but you see it's hard when I don't get a day off from this body of mine. At present, my legs are sore like I ran a marathon, my head has a shooting pain, my back burns and all I can think is that I shouldn't be complaining.
 Life with chronic pain
Aside from looking fine on the outside, I spent money we don't have on blood tests that are only performed in the states for Lyme and Parasites to get answers that we don't know will come. So, he took my blood, and by Tuesday it will be on it's way to a lab somewhere in the states and by ten days from now I should get a call about the results....which could be positive or negative for oh so many things... Which I am afraid of because if they all come back negative, that will mean that I have to go through with the investigative surgery and I hate being cut open about as much as the next person. But I think I'm almost more afraid of how violently I will end up vomiting from the knock out gas they'll give me. However on the up side, the surgery won't be preformed at Abbotsford Hospital, where nurses tell me to be quiet as I cry due to the pain of a gallbladder about to burst....yeah, cause that made sense. And, they wonder why I didn't come in sooner.
I dream of...May you never know what life is like when you are under chronic pain's grip.
I am putting off calling my family doctor because it means I'll have to follow the pain specialists instructions and ask him to refer me back to the Gastroenterologist for another colonoscopy for another look into chron's and lupus. That was not on my list of 'things to do this summer' and if having a colonoscopy is on someones list of 'things to do this summer' I would seriously question their sanity....I mean who wants a "c.u.b.".....On the list of things "to do"= things to put off doing for as long as I can...is handing in a 20 page packet of consent forms and surveys to the Women's Hospital in Vancouver where a UBC specialist waits to see that they can legally cut me open for research. I didn't mind the consent form I mean I'm at wits end being this sick and seriously desperate enough, it's more the surveys of my pain and how much of an effect it's had on my life that I'd rather not allow anyone to read because then they'd realize just how much of a life I have....it's embarrassing.

And even though I'm feeling quite blue, I am thankful today for a lot of things such as:

  • a credit cards that allow me to pay for tests I can't afford   
  • the ability to ship my blood to a lab in the states to be tested    
  • a new basement suite to rent with good landlords
  • landlords that let us have our cats (my only friends..at times)
  • and a husband that's my best friend

you'll get there.
~ElysiaB

Saturday, March 22, 2014

emo christmas...


Can u feel the christmas spirit already from the pic? (don mind the bad weather though)

Friday, March 21, 2014

Don't worry...

Thursday, March 20, 2014

Soldier...

i dunno wat i'm getting myself into, but one thing i'm clear -

God, i'm so ready for wat You want me to do now...

it's time to kick some butts... muahahaha

Wednesday, March 19, 2014

Jawohl!

es schneit immer noch, und ich mag es nicht... hab versucht viel zu lernen aber ohne erfolg... endlich geht es los, ja ich meine die Prüfung...

*** spannung***

bin nicht sicher ob ich genug gelernt hab, aber wenn ich so viel Zeit, ein Post auf deutsch zu schreiben, dann bin ich fast verrückt... Viel zu lernen, so wenig Zeit und noch weniger Platz im Kopf...

zurück zum polymethylmethacrylat oder polyoximethylen... or watever it is =_=

noch ein paar Stunden vor dem Sturm!!!

dictator of a disorder

So Easter is tomorrow, and it will be the first ever easter I have had that I won't get an easter bunny or basket with chocolate from my mom to wake up to. As a person who loves festivities, holidays and traditions its a bit sad. I was excited about easter that I started buying stuff for my husbands easter basket early march...like I said I love holidays I get right into them. But alas no bunny for me, cause we left his easter shopping till today and well to be honest today had a rough start to say the least. And by the time we went anywhere it was 4 then got so busy n carried away with other stuff that the store was closed.
Some Pictures and then the tale of pain and life. Warning its not going to be pretty. 





In other news, I have just finished a 20 page paper, have two presentations to work on and present, plus endless house cleaning and studying for finals which are in a week n a bit. Plus I finally have an appointment to get in to the internal specialist to go to the day in between my two finals, eek.  For someone with an autoimmune disorder that worsens with stress, well it's not looking/feeling good. Tonight my back hurts sooo bad it's probably my liver that's been bad...due to medications but emotionally I feel so detached and sick right now that at any moment I'm afraid I'll break down. I mean someone will ask me how I am and I'm afraid they'll see right through me, and I'll start crying cause I can't handle it all. I know to any normal person I sound pathetic I should be able to handle it. But people out there across the internet with the same type of disorder might understand. I can't express enough how thankful I am to even read just one forum on a health site or article on dearthyroid about other people going through the same thing. I feel so alone, sore, and just plain broken right now that they just sooth the heart to know I'm not alone. It's a big deal because the past weeks I've struggled so hard as I've been sicker due to new med's and trying to get off old ones. This struggle of pains is wearing me down to the point where I feel raw. Then I'm told i'm grumpy but I'm in so much pain I just don't care cause there are worse things, and if you were in excruciating pain all day wouldn't you be just a tad grumpy? Sorry this isn't a up beat post, its just me at this moment being real. Its my life, going through the ups but mainly downs of being in neuropathic pain, muslskeletal fibromyalgia pain, hashimoto's pain, and chronic fatigue. I'm just feeling worn right out and so so done. Yet theres so much I still need to do, so I keep going because I can't stop now, I have no choice but to keep going. 

So

pressing onward, I have low hope about the upcoming specialist appointment. I mean don't get me wrong Im stoked just to get in, but I always get my hopes up just to be disappointed. Everywhere I look theres just too much to do. It feels claustrophobic, and going through the motions each day I feel like I can't help but want to go back to bed. I'm so tired I wish I could go into hibernation like a bear. Physically speaking though; I've hardly had a good nights sleep in weeks my eyes sting from it, they even have big blueish tinted bags around them, its embarrassing. My back hurts as I said horribly, I have a sharp pain in a nerve down my nose, sore stinging almost pain in my ears and a blazing head ache. But aside from the eyes I look fine, I hate that about this disorder.

It drives me nuts, it control everything yet, you can't see it. Its not like a broken arm, that's physical. And i think for me that makes it that much harder. I'm held to the standard that since I look healthy and fine I should be able to do everything, as good and competent as any other healthy person. Yet, inside I have so so much going on. It hurts deep down when I'm called on something I couldn't do cause I was in too much pain, more so because it's not understood. I wish so incredibly much that they could understand. but its one of those things that some don't believe or forget about because they can't see it, and be reminded of it.

Faith-wise, I hold on to the comfort that my big God understands, although I can't deny that right now I feel conflicted. Im so deeply deeply thankful to him for what he did on the cross, and I can't help but feel guilty for being frustrated that he's not healing me, that I'm just like this. I understand that he has allowed it to happen and that he has a plan. Sometimes it's just incredibly hard to be okay being completely out of control. Cause right now I have no control over finances, school work, being able to work, my health, my pain levels, what I eat, when I go to the bathroom, getting out of bed, my concentration levels, my sleep, my med's, my .....Okay brutally honest it'd be easier to list what I have control over.. sad, but true. My life is ruled by this evil dictator of a disorder, my every choice based on pain level, or digestion. I wake to pills and go to sleep to pills. I just want to escape into my painting, walk through a door way into a happy valley and just sit under a quiet blossoming tree and sleep like a bear. Today I don't want to be me, and with tomorrow being an indefinite repeat of dictation I just wish I could hibernate till it's over, or be transported to heaven where theres no pain.

~ElysiaB  


Tuesday, March 18, 2014

Where do I stand?

Lately i have been pondering a lot on this - where do i stand, in my family, in my studies, in my different surroundings eg Uni friends and my other Malaysian friends, as a senior or junior, and my other secret identity as a co-leader in my housechurch (ok now not so secret anymore) to my team and my other leaders. It's confusing, often when i stop and ponder and stare and let everything settle down and rethink again, it really doesn't bring me any further, i mean things might reveal themselves slowly but if i juz stood there and got stuck, what's the point? The fact is, keep walking, keep trusting and don't stop n stare too long.

As the germans say, macht weiter!

Monday, March 17, 2014

Midterm morning delight


Upon waking up I rushed, rushed, rushed, to get to class on time for 8 as class always starts at 8. I arrive with my precious Tim Horton's coffee (french vanilla with 1/4 coffee), in hand and sit down in my class room. I look around its silent, theres only two other student in the room and no teacher and it's like 2 minutes to 8AM. I'm going whaaaaatttt???is this some bad joke????Okay I'm thinking mabey everyone's late cause they're normally late cause unlike me, who wakes up an hour early, so I can get ready early and eat and then, drives a whole 15 minutes to get to class on time. They just walk five steps from their bedroom (dorm) to the classroom. a whole building away. 

I know I sound a bit like I'm making a big deal outta nothing cause well I am. The truth is I love the luxury of space and freedom and commuting gives me all that and more! LOL more as in I have a basement suite vs. a dorm, a hubby as my room mate vs. another girl I don't know. And a bit of quiet vs. chaos. For me it's great, my thyroid thanks me. Cause the less stress means the less pain, and sick days. YAY.

Any who sorry for the side track, So back to the midterm I'm sitting in class going WHHHAaaattttt??? I go to the lobby check my mailbox thinking may be there's a notice...but no shaa-bang. Only old notices that my mail box buddy (giving him the benifit of the doubt) forgot to throw out. Although when I fill through them I see that apparently I came an hour early to the exam room. Dang. SO I go back and relax it was kinda nice... I kinda enjoyed it... I played Angry Birds on my iphone...it was awesome! 

When the students and professor arrived and we finally got to writing this thing I went through my method of test taking:
1. read the test instructions and questions (seeing that they are all essay questions I proceed to 2.)
2. write in point form all the notes to the essay questions ( to help my memory, so that when I come back I can review them and then write an essay with all the points, saves you from the chance of forgetting everything you studied about essay #4 cause You were too focused writing essay #1, 2, and 3...)
3. I write out each essay while afterward making sure I got all the points that I jotted down from 2. 

I finished three essays in an hour and a half and got home early yay. 

ElysiaB 

Question of the day: Whats your most awkward exam writing experience? Comment  your answers below and I will repost the top ones 





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Sunday, March 16, 2014

我可不可以不勇敢?

【几米语录】每一次我都说,没事,我行。我总带着坚强的微笑,一副永远勇敢的样子, 可这一次,我想说,我可不可以不勇敢?我只是小心翼翼地问了自己, 然后又带着坚强的表情,勇敢了一次。他们都赞许地微笑了。

Today I Just Want to feel Normal

Today I just want to feel normal, I missed school this week cause I was too sick to go again. Everything is throbbing and I don't want to get out of bed, I just feel aweful. I read facebook and hear all those funny remarks about the awesome college experience other people are having and I feel a bit disconnected. Disconnected from the ocean I want to join, the experiences I wanted to have, the deep friendships I wanted to build. I feel stuck in my own tide pool where I can watch those friendships grow but cannot part take, because I am unable to be in their water. I know I'm growing in my own ways, and I know God is with me through it but I cant help but feel a tinge of sadness for the life I wanted to live.

I'm not saying I resent this illness, thats not what this is about. I'm just saying that deep need to feel accepted and supported by your peers, well I still feel it. I guess it should be no surprise that I still feel I'm on the outside of this other world, I'm hardly well enough to submerge into it. I just wanted so much more for my life, then to be sick all the time, no one wants that. Resentment though would mean that I have negative feeling for my illness and that I wish I didn't not have it. In truth, I accept that this is what God has allowed in to my life, and that doesn't mean that I have to like it, but I accept it.

Through accepting it I try to see the good in it, and there is good in everything. Some people have a hard time relying on God and I'm not saying I'm amazing at it. But when he's the only one that truly knows how I'm feeling, the pain, the frustration, and understands it all, and is there through it all. Well that makes it easier for me to lean on him, he gets it. He gets that outside I look fine and yet, inside my body is barely hanging on. And so I have to trust that a God so big that, created the heaven and earth, and let his son die for my sin, has a plan for my life. I have to trust that as long as I don't give up and keep pushing on we'll get to where I'm supposed to be together.

Today it's just harder, maybe it's because there's more pain in my lower back, plus the side effects of this new drug aren't helping. So today normal sounds better than this.

~ElysiaB

Saturday, March 15, 2014

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Exhausted

For the past three weeks I've studied really hard. Which means I've essentially pushed my body really hard. I've gotten up, eaten, studied for hours then took an exercise break in hopes that the chemicals released from working out would wake me, then I'd continue to study really hard, pushing through the symptoms, the pain, and the throwing up. In spite of the wicked cough and stuffed up nose I pushed hard cause these exam and this degree mean a lot to me. I want to do well but more than that I feel I have to do well. It feels like if I don't push as hard as I can to do my very best, my body wins. And honestly I just can't let that happen, because every time I fall into a patch of symptoms (be it fever, throwing, up, shakes, incredible electric pains, anything) I feel like I'm less of a person due to my lack of control over my body's disorders. I know it doesn't make me less of a person but when I'm lying in bed feeling defeated, it feels like I'm lossing this battle. Today I'm done exams, and I'm in bed feeling all the after shock of pushing my body too far. The pain hurts more and more all over and random, my back is so tender that even lightly touching it hurts, my wrist burns and throbs, I have a headache I the bridge of my nose thats super sensitive. So here I lay, knitting and watching Dr. House entertain me with his sarcasm, it hurts, but it's over now. 

Christmas vacation is here, and I get a month off, which already has a large cleaning list, paperwork and tons of other chores just waiting to take over. At the moment I feel slightly guilty for just sitting and not being able to get to those things. Yet, all I want to do at this moment is be incredibly selfish, I don't want to make dinner, I don't want to clean, or do paperwork or anything thats waiting for me to do. I know that if I don't do it no one else will, but at the moment I just don't care. I just want to rest in peace until my body recovers, in a week or two if I get the rest I need, these pains won't go away but I'll have the brain function back and the little bit of energy I'm used to, to get back up and get things running again. Right now I just want to be a bear and hibernate in my cave. 

I know that until I've recharged my batteries every time I mention what hurts or how I feel, I will hear that awful question of "why does that hurt?" or "you need to go to your doctor." or "should you go to the hospital?" I don't mind being asked how I feel but it's questions like this after that are starting to really frustrate me. I have Hashimoto's, fibromyalgia, neuropathic pain thats come from an undiscovered other disorder that the doctors have yet to figure out. So when I get asked why do I think *fill in a symptom* hurts, if you thought about that question before asking it does it not resolve itself? I hurt because I have these disorders, why does that specific thing hurt at this moment? well for two reasons A) due to other diagnosed reasons or B)How should I know they haven't figured out what new painful disorder I have? I suppose in this state of pain that I'm in right now those questions are extra irritating and patronizing. I know I need a better attitude and I really do appreciate that the people asking care enough to think about it, and it's only patronizing if they do know about the illnesses that I have. At these times I just want my own bubble so I don't hurt someone by saying the wrong thing while being in a lot of pain. I'd feel incredibly bad! However, having this amount of pain in reflection causes me to be able be more patient and hold my tongue better, as well as hide how I feel better which can be good.

Yet through this I thank God for watching over me and helping me get through this pain when I don't feel like I physically can. 
-ElysiaB


Friday, March 14, 2014

learning.still.learning

Sometimes courageous leadership means standing still, saying nothing, completely confident in God. See 2 Chron20:17
True leaders dont choose the popular way, they make the right way popular. Leaders create consensus.
Is it better to err in being too merciful or too judgmental? James 2:13 "Mercy triumphs over judgment!"
Never follow a leader who always preaches against the sins of others but never publicly confesses his own. See Lk 6:41-42

Source : Rick Warren's tweets

Thursday, March 13, 2014

What you need to know for Beeswax Organic Pastilles, White, 100% Pure 4 Oz

Beeswax Organic Pastilles, White, 100% Pure 4 Oz


Beeswax Organic Pastilles, White, 100% Pure 4 Oz


Brand : Dr Adorable

Amazon.com Price : $5.49




Features Beeswax Organic Pastilles, White, 100% Pure 4 Oz


Natural, organic, pure
Fragrant, clean, and perfectly filtered
Cosmetic grade. Suitable for cosmetic and medicinal uses
Can be added care products, salves, lotions and cosmetics to improve appearance and consistency
Great material for auromic candles

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Descriptions Beeswax Organic Pastilles, White, 100% Pure 4 Oz


Beeswax is a wonderful substance - a natural wax secreted by worker honeybees. Beeswax has been used across the globe since the dawn of civilization. It has been used to make food, cosmetics and medicine. Our organic, all natural beeswax is good for both cosmetic and medicinal applications. It comes packed into small pastilles, ensuring that it will be convenient and easy to use. Our beeswax is a very fragrant, clean, and perfectly filtered product without the debris and muddy color found in typical waxes.



Beeswax has considerable water-holding capacity. Adding it to body care products, salves, lotions and cosmetics will improve their appearance and consistency. You can also use them to make your own aromatic candles. As they fill your rooms with a pure, pleasant scent, they will emit negative ions that will help reduce unpleasant odors, dust, pollen and other allergen. Beeswax candles emit virtually no smoke, and they burn hotter and brighter than most other candles.


Beeswax is suitable for food and cosmetic uses.



Recommended Usage:



*CP Soap: 1 - 3%

*Deodorant: 30 - 40%

*Lip Balms: 10 - 25%

*Lip Stick: 35 - 50%

*Lotion Bar: 30 - 40%



 
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